good question. Debi, watch this video from March 2014. It will explain a lot and answer your question about being back on oxygen. http://youtu.be/vTK69rtQ4QA
Just wondering, if you are doing so well.. after all these years, why are you still using oxygen ???
I lost my husband to this horrific disease 12 years ago. He wasn’t able to meet our son 🙁 I pray daily for a cure for cf & the children & families affected by it. Thanks for this blog. I pray that the U.S. government will end their deals with insurance & drug companies to simply ‘manage’ conditions like cf & cancer and to actually allow doctors to ACTIVELY treat & eliminate the diseases completely.
is Angelo DiStefano still alive?
I have a 17 year old son, o2 dependent and been severely impacted by CF. I recieved such hope reading your experience with stem cell. Unfortunately, finances are a huge obstacle, I will have to fundraise via internet and local. Is it illegal since he is not 18 yet to let people know it is for stem cell treatments.
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