Tag Archives: cfawareness

Huff and Puff and Blow Down CF

Effective Technique for Airway Clearance for Cystic Fibrosis Patients

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Question: How Many People does it take to Order One Portable Oxygen Concentrator?

Answer: I still don’t know! I will be traveling by air next week, and I need a portable oxygen concentrator plus an extra battery pack to last the duration of the flight, getting through airports, and any possible delays. I … Continue reading

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Imagine Life with Cystic Fibrosis

Imagine your life without oxygen.  It’s hard to believe that anyone could endure the experiences that I am about to describe, but try to imagine them. Imagine having to fight for everything in your life, including the very air that … Continue reading

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Adult Stem Cells for Cystic Fibrosis – Overview

Several people are asking about the procedure, so I will share an overview here and try to answer all the questions. The procedure is rather simple.  As a Cystic Fibrosis patient, I need a donor of adult stem cells.  Note … Continue reading

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Obsession with Calories

What is all the fuss about calories.  I have never been impressed with the nutrition advice I get from the CF Clinics. They just say eat more calories, but don’t really care what kind of calories.  I think they should … Continue reading

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